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 just joined, hello!

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TT-Era
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PostSubject: Re: just joined, hello!   Wed May 25, 2011 7:34 pm

it is very pleasant to play with you echidna. you seem intelligent and nice person and player. I hope to see you wearing JKR tag very soon.
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echidna09
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PostSubject: Re: just joined, hello!   Thu May 26, 2011 3:42 am

Thanks, and big hugs to both Pam and Era! bounce

I had a REALLY good time last night, playing with you guys. I wonder if you guys realise how great it is to be surrounded by quality, intelligent people (you probably almost take it for granted, but, from my perspective, it really brings the game to a new level for me).

I've learnt more about this game over the past 3 weeks than I had over the previous year or more playing it. Its wonderful that you let me into you group, and I feel so happy to be a part of a team (even if I'm yet to prove myself).

Thank you! Very Happy
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echidna09
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 11:58 am

Hello, my fellow Jokers!



I have some news from my doctors at the hospital. Unfortunately, I will be needing some more chemo. However, this doesn't mean I'll be going in to stay overnight anymore. Nowadays, you can get connected to chemo and go home with it on the same day. My mum (AKA Wonder-Nurse) can then unconnect me, and I'm back to normal a day later.



This is a special type of chemo that I had to fight for funding for, about 2 years ago. It doesn't make you lose your hair, make you sick, or make you have to take antibiotics! Of course, now the funding has been approved (thanks to me), everyone is having it, and they all love it.



Antibiotics, btw, suck balls. They're evil-tasting, makes everything you eat taste like grit, make you sleepy, make your tongue feel furry, give you oral thrush, make you sick and make you poorly. So, the less of them I have to take, the better!



All in all, I'm quite lucky that they still think chemo will help me. Anyone who wants to contact me about all this stuff, feel free (I'm pretty-much an expert-patient).



See you online soon! :-)
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FunkiVon
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 1:14 pm

im interested in what kind of treatment you are getting as chemotherapy. antibiotics are usually given in oncology as a prevention because chemotherapy weakens your immune system.
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neoitvaluocsol
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 1:17 pm

wow cool, sounds like the new chemo is a huge upgrade from the old. Glad your treatments can be less grueling and painful and stuff.
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echidna09
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 1:46 pm

FunkiVon wrote:
im interested in what kind of treatment you are getting as chemotherapy. antibiotics are usually given in oncology as a prevention because chemotherapy weakens your immune system.

Vonny, I'm having Trabectidin. Its a relatively new type of chemo, which was originally derived from a sea-squirt creature. It took about 30 years, but now its available for everyone to have in the UK.

It's not quite so harsh on the immune system, when compared to other chemos like Doxorubicin, Ifosfamide, Cisplatin or Etoposide (all of which I've had). This means the usual week of antibiotics aren't necessary. I usually have an injection in the flabby bit of my tummy 24 hours after the end of chemo, which will be the same this time. This boosts white blood cell production, which helps.

Of course, the normal anti-sickness drugs are needed. My drug of choice is Nozinan. Its great. :-)
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TT-Era
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 3:56 pm

I hope everything will be ok, echi, and like neo said, I am glad too that this new therapy will be less painfull.
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FunkiVon
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 5:08 pm

Oh! Trabectedin isn't commercially available in the States, or in my part of Canada yet (probably needs funding for the research and approval here too). I'm happy to hear your treatment will be less harsh on you and that your treatment got approved for you and for the rest who will need it there Smile I know it's a long tedious process. I hope all goes smoothly! Smile

I'll be getting my oncology classes in the upcoming school year, and I'll remember to look it up more in depth!
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glitched18x
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PostSubject: Re: just joined, hello!   Thu Aug 04, 2011 6:44 pm

I'm glad to hear this good news Echi and kudos to you for being a pro-active patient. I know, being in health-care, that there are a lot of shady things going on in the system and it's not easy to fight for your rights.

I was wondering if the shot you were talking about is Neupogen (Filgrastim)? It is pretty expensive but I guess it's really effective. ^_^

And I didnt know Nozinan is used as an antiemetic! We usually use it to calm our naughty patients. LOL. I learned something new. Smile
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echidna09
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PostSubject: Re: just joined, hello!   Fri Aug 05, 2011 3:39 am

glitched18x wrote:
I'm glad to hear this good news Echi and kudos to you for being a pro-active patient. I know, being in health-care, that there are a lot of shady things going on in the system and it's not easy to fight for your rights.

I was wondering if the shot you were talking about is Neupogen (Filgrastim)? It is pretty expensive but I guess it's really effective. ^_^

And I didnt know Nozinan is used as an antiemetic! We usually use it to calm our naughty patients. LOL. I learned something new. Smile



YES Glitchy, thats the stuff, Filgrastim. Not every hospital can afford to use it for every chemo patient, but its really good! I know that the hospital I go to is one of the only ones who use it.



Nozinan is the best anti-sickness drug I've used. I had no idea that it wasn't intended for that purpose!



I'm glad I wasn't alone when I was fighting for my new drug. There's a lady called Kate Spall, who is a barrister but she also campaigns for new chemo drugs. She's really good, and without her I wonder what I'd be like. :-(
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Flimming
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PostSubject: Re: just joined, hello!   Fri Aug 05, 2011 2:34 pm

Aww i'm glad you're getting a better type of chemo echi!
i hope everything goes well Smile
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echidna09
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PostSubject: Re: just joined, hello!   Sun Aug 14, 2011 1:56 pm

I feel quite sad really. But, I'm moving on with my life, so that's a good thing!

I'm moving in with my fiancée on Friday next week (19th August). Unfortunately, we won't have Broadband internet for some time. This means I won't be able to play online anymore after that date.


Thank you for letting me play with you guys, its been a blast! I've discovered new things about the game, and made some good friends. If you'll let me, I'd like to continue chatting on the forum and adding my comments to your posts.

I feel quite tired most of the time, and I hardly stay awake after 9pm now.

I still hope to see you guys online this week. :-)
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Flimming
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PostSubject: Re: just joined, hello!   Sun Aug 14, 2011 4:42 pm

Moving on with life is a good thing echi Smile i hope everything goes well and thats sweet that you're moving in with your fiance
so does this mean you're leaving us? or sleeping joker?
either way i hope you stay and chat with us here Smile and maybe even try join some fp games when you get internet Very Happy good luck in life echi
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FunkiVon
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PostSubject: Re: just joined, hello!   Sun Aug 14, 2011 5:54 pm

ohhh! sounds romantic, les fiançailles *dreamy* Please

est-ce que cela veut dire que nous ne te verrons plus jamais sur psn? ou est-ce que tu vas arranger l'internet plus tard quand tout sera arrangé?

En tout cas, bon déménagement!! je sais que cela peut être très épuisant, mais prend soins de toi, cher!
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echidna09
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 3:19 am

Thanks Flim and Vonny! I will be absent on PSN for now, but I hope I can still contribute on the forums. I'm not leaving the clan but I don't think I'll be playing now until I get the internet sorted out.

:-( sadness...
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EvilMijo
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 3:43 am

Take all the time you need, we'll be waiting for your FP return.
See you in the chat room one day.

_____________________________________________

$hit Eating Grins For EVERYONE!!!!DAHAHAHAHAHAHAHAHA!!

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munapoolo
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 7:42 am

Bye echi! We await for your return! :bully:
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glitched18x
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 7:52 am

Best of luck echi. We will miss you for sure! But take all the time you need, the Jokers will be here to welcome you back anytime. Smile
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munapoolo
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 8:01 am

oh and if you dont come back... thats a paddlin'
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Pamalam
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 9:01 am

Oh Echi! Don't leave us!

It's exciting that you are moving in with your Lovely fiancee! You are still a Joker, and are always welcome here! Like Flim said, we can just move your status to "sleeping" if you like, so we know not to consider you for battles, until you get internet again.

(Note to self, I now have mad time, to polish my Fancy pants skills, while waiting for echi's return!)

Besides, you have to stick around on the forum, I have been meaning to ask you for updates on your saturday baking days... and, I still have to attempt to make your scones for my around the world thread. (<--life has been crazy busy..sorry!)

You are part of our worldwide family, mister...so dont think we will let you go that easily!


_____________________________________________


Last edited by Pamalam on Mon Aug 15, 2011 10:39 am; edited 1 time in total
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Flimming
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 9:13 am

Oh good you're not leaving us Smile yeah you can be a sleeping joker until your internet is back Very Happy
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shred2death
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 10:27 am

bye echi, hope the move goes well and hope to cya soon.
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JamesUK
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PostSubject: Re: just joined, hello!   Mon Aug 15, 2011 10:09 pm

[Echoes everything that everyone has said]

Take care of yourself, and dont be a stranger on the forum ^_^
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TT-Era
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PostSubject: Re: just joined, hello!   Tue Aug 16, 2011 1:11 am

Oh.. Good luck echi and we'll miss you and you are always welcome here! hands
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